Links

Autism:

Behavior Disorders:

Blindness and Visual Impairments:

Brain Trauma:

Cognitive & Developmental Disabilities:

Deafness, Hearing Impairments, and Communication Disorders:

Disability Information:

Gifted & Talented:

Health Care and Financing issues – health insurance and other ways to finance the costs of needed services (including grievances, denials and appeals – i.e. Strategies for Appealing Health Plan Decisions)

  • Advocacy 101 – items that help strengthen advocacy skills (Communication skills, parenting skills, letter writing, speaking with professionals, asking questions) 
  • Patient-centered care: how do you know if you are getting it?
  • Children's Rights and Child Health (Starter Kit for Community Preceptors):  
  • 504 Accommodation Plans related to Health Conditions (i.e. what are the legal obligations of schools to provide health-related services and therapies? Accommodations needed for equal access).
  • Who helps with what? Which state agencies are involved in health care and health coverage?  What do medical and managed care terms mean?  What should families look for in selecting a provider?  What questions should families ask? Children only receive quality health care 47% of the time says this report: 
  • Parent-to-parent support skill-building (How can parents provide support and assistance to families without substituting their judgment?  Understanding and respecting cultural diversity. How can parents be culturally competent in working with diverse families? How can parents emotionally support, inform, and educate parents so that they are strong, knowledgeable, and confident in caring for their child with special health needs?)
    Spanish speaking? Follow the link below and click on the "ERIC full text" option to view or download an article: 
    Puntos Basicos para Padres: Apoyo Padre a Padre (Basics for Parents: Parent to Parent Support):
  • Parent-professional collaboration strategies.  How can families work with their health care provider to secure quality care and coverage for their child?  How can health care providers and families communicate more effectively?  What are effective health advocacy strategies?  What is a "medical home" and how can parents access it for their child with special health needs?  Effective communication with medical professionals (for women, but has broad application):
  • Understanding Medicaid funded Waiver Services (Including the philosophy of individual and family-centered supports). A waiver services primer: 
  • Legal information - what are the rights of children to medical coverage under Medicaid, SCHIP, fee-for-service coverage. How can families use complaint, arbitration, and grievance procedures to resolve disputes?  What are the legal obligations of schools to provide health-related services and therapies? Why is Medicaid so important for children with disabilities?:
  • Transition from Pediatric to Adult Health Care and Self Determination in Health Care (the important leadership role that individuals with disabilities and their families must play in moving from pediatric to adult health care). You’re not a kid anymore: transition, by stages, to adult health care:
  • Sexual Health awareness and information handouts from the Academy of American Pediatrics: 
  • LD Online: guide to learning disabilities for parents, teachers and students.
  • LD Resources: resources for the learning disabilities community.

Legal Issues:

Organizations:

Resources for Parents:

Stories: Special Needs and Accommodations:

Transition:

 

Advocates for Children
Association for retarded Citizens of the United States
Class Size Matters
Evelyn Douglin Center
Exceptional Parent Magazine/Publication
Federation Employment and Guidance Service
Grace Foundation
Heartshare Human Services Of New York
Helping Parents and Advocates Improve Educational Results for Children with Disabilities
Inside Schools
New York State Lawyers for the Public Interest
The New York Institute for Special Education
Virginia Autism Research Center
Carol Schall
Wrightslaw
Yellow Pages for Kids

 


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