Parent Information Links




Just Starting Out

Parents unfamiliar with autism should visit these sites which provide general information about ASD. More detailed information and links to advocacy groups is also available through these sites.

Ø  The Autism Society of America
A leading source of information and referral on autism with 20,000 members connected through a network of over 200 chapters in nearly every state.

Ø  National Information Center for Children & Youth with Disabilities (NICHCY )
Autism and Pervasive Developmental Disorder, fact sheet 1 (FS1), August 2002
NICHCY is a Federally funded clearinghouse for information, publications on disabilities, listing of national disabilities organizations and conferences schedules .

Ø  The National Institute of Child Health and Human Development (NICHD)
Click on Keyword "Autism" or "Autism Research" to download free publications. NICHD supports laboratory, clinical, and epidemiological research on the reproductive, neurobiological, developmental, and behavioral processes that determine and maintain the health of children, adults, families, and populations

Ø  Indiana Resource Center for Autism
Articles on a variety of important topics as well as program descriptions.


 Need More Information

Once you have some background, you are ready for these links which offer detailed information on research, treatment, publications and associations.

Ø  National Information Center for Children & Youth with Disabilities (NICHCY)
NICHCY is a Federally funded clearinghouse for: information, publications on disabilities, listings of national disabilities organizations and conference schedules. Many of their publications are available in Spanish.

Ø  Project TEACCH / University of North Carolina at Chapel Hill
Established as a result of  State legislation mandating comprehensive, community based programs dedicated to improving the understanding and services for autistic and communication handicapped children and their families.

Ø  "Parenting a Child with Special Needs", News Digest 20 (ND20), 1997
A publication of the National Information Center for Children and Youth with Disabilities. In the first article, "You Are Not Alone," Patty McGill Smith speaks candidly to parents about the emotions that many parents of exceptional children experience and offers a perspective for living and coping with the impact of disability upon the family.

Ø  Indiana Resource Center for Autism
Full service site offering links to literature, organizations, conference schedules

Ø  Mt. Sinai Seaver Center for Autism Research and Treatment
Funded by a major grant from the Seaver Foundation since 1993.  Dedicated to unraveling the biological causes of autism and related disorders and developing effective treatments for autism.  Interdisciplinary approach to the study of autism includes Family/genetic studies, Brain Imaging studies, and Biological, Auto immune, Neuropsychiatric and Psychosocial and Medication Treatment Studies.  Offers an integrated series of unique program ranging from clinical care to neurobiology to genetic studies.

Ø  First Signs
Web site provides extensive vital information covering a range of issues: healthy development, the screening and referral process, treatment, current research and guidelines, links to other organizations.

Ø  The Cambridge Center for Behavioral Studies
Offers a wide range of valuable information to families.

Ø  New York State Office of Mental Retardation and Developmental Disabilities (O.M.R.D.D.)

Ø  The Center for the Study of Autism (CSA)
The CSA, located Oregon, provides information about autism to parents and professionals, and conducts research on the efficacy of various therapeutic interventions. Conducts research in collaboration with the Autism Research Institute in San Diego, California.

 


 Advocacy

Here are links address your rights and responsibilities as the parent of a handicapped child.

Ø  The Autism Society of America
A leading source of information and referral on autism with 20,000 members connected through a network of over 200 chapters in nearly every state.

Ø  Autism National Committee (AUTCOM)
An advocacy organization dedicated to "Social Justice for All Citizens With Autism".  Founded in 1990 to protect and advance the human and civil rights of all persons with autism, Pervasive Developmental Disorder and related differences of communication and behavior.

Ø  Autism Distance Education Network
Provides access to a variety of types of information and programs as well as links to several related net/web domains.

Ø  The Council for Exceptional Children (CEC)
The largest international professional organization dedicated to improving educational outcomes for individuals with exceptionalities.  Involved with policies, professional standards and effective professional practice.

Ø  The Doug Flutie Foundation
The Foundation's mission is to aid financially disadvantaged families who need assistance in caring for their children with autism; to fund education and research into the causes and consequences of childhood autism; and to serve as a clearinghouse and communications center for new programs and services developed for individuals with autism.    

Ø  Fighting Autism
Click on Autism Clock link to view prevalence of autism in US.

Ø  Grace Foundation
Support and advocacy site created by families on Staten Island and Brooklyn, N.Y.

Ø  National Dissemination Center for Children with Disabilities
Links to organizations, publications available online, library resources, conference schedules. What are you looking for?  Which list you would like to search ....."

Ø  National Alliance for Autism Research/Autism Speaks
Established by parents in 1994, NAAR was a national, nonprofit, tax-exempt organization dedicated to finding a cure for ASD. It has merged with Autism Speaks, an Autism advocacy group.

Ø  New York State Office of Mental Retardation and Developmental Disabilities (O.M.R.D.D.)

Ø  Office of Vocational and Educational Services for Individuals with Disabilities (VESID)
The Mission of VESID is to promote educational equity and excellence for students with disabilities while ensuring that they receive the rights and protection to which they are entitled.


 Visit the Source

Here are links to the institutions or agencies which developed or focus on a methodology presented on this web site.

T.E.A.C.CH. sites

Ø  Project TEACCH / University of North Carolina at Chapel Hill
Established as a result of  State legislation mandating comprehensive, community based programs dedicated to improving the understanding and services for autistic and communication handicapped children and their families.

Ø  Applied Behavior Analysis (ABA) sites

Ø  Christina Burk
Information on the history of ABA, verbal behavior, and effective learning procedures.

Ø  The Carbone Clinic
Research on the use of ABA/Verbal Behavior by Dr. Vincent Carbone, BCBA.

Ø  The Behavior Virtual Community
Site where behavioral professionals and the public can interact and exchange information and resources on issues of importance inn the home, school, workplace and in society.  Membership is free.  BVC is actually a collection of separate conferences to serve different "communities of interest".  Most of the conferences are open to anyone but a few are private and restricted.

Ø  The Cambridge Center for Behavioral Studies
Site offering a wide range of valuable information to families.  The Virtual Behavioral Community (BVC) offers the opportunity for behavioral professionals and the public to interact and exchange information.

Ø  The N.Y. State Chapter of the Association for Behavior Analysis (ABA)
An international organization devoted to the study of experimental analysis of behavior.  Click on ...."Links to Behavioral Sites"

Ø  Douglas Developmental Disabilities Center (DDDC), Rutgers University
Established 1972. Provides outreach services to individuals with autism and their families. Works to advance contemporary knowledge about autism and related developmental disorders. Conducts professional training and disseminate clinical research information. The Douglas School is a state-operated, university-based day program for individuals with autism from ages 3 through 21.

Miller Method sites

Ø  The Language and Cognitive Development Center (LCDC)
LCDC is a nonprofit school, clinic and training facility for the treatment of pervasively disordered (PDD) children.

Ø  Sensory Integration sites

Ø  Sensory Integration Resource Center, The Kid Foundation, Colorado
Resources and information for families, consumers and professionals.  Highlights web sites which provide information, support groups and resources for professional, families and individuals with sensory integration dysfunction (DSI) and/or other neurological and mental conditions.

Ø  The Ayres Clinic
Founded by Occupational Therapists . Focuses on research, professional education and evaluation of new treatment approaches and theoretical models.
A clinical explanation of Sensory Integration

Cindy Hatch-Rasmussen, M.A., OTR/L
Therapy Northwest, P.C.  Beaverton , OR 97005

Picture Exchange Communication System (PECS) sites

Ø  Pyramid Consultants home page

Asperger Syndrome sites

Ø  Asperger Syndrome Education Network (ASPEN ®)
ASPEN is a regionally-based non-profit organization headquartered in New Jersey, with 12 local chapters, providing families and those individuals affected with Asperger Syndrome, PDD-NOS, High Functioning Autism, and related disorders.

Ø  The Global and Regional Asperger Syndrome Partnership (GRASP)
The board and directors of this advocacy and information group are all on the autism spectrum.

Agencies

Ø  QSAC
N.Y. agency providing educational program and services to clients and their families.

DISCLAIMER: Autism is a complex disorder. The information presented here is designed for informational purposes only and is presented as a public service. The contents of this web site are not medical, legal, technical or therapeutic advice and must not be construed as such. The information contained herein is not intended to substitute for informed professional diagnosis, advice or therapy. Visitors should not use this information for diagnosis or treatment without also consulting a qualified medical or educational professional.


 



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